Chapter

<b> <i>Access versus Protection: Minority Representation in Pediatric Research</i> </b>

Lainie Friedman Ross

in Children in Medical Research

Published in print February 2006 | ISBN: 9780199273287
Published online May 2006 | e-ISBN: 9780191603655 | DOI: http://dx.doi.org/10.1093/0199273286.003.0003

Series: Issues in Biomedical Ethics

  Access versus Protection: Minority Representation in Pediatric Research

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This chapter examines the extent to which pediatric researchers reported race and ethnicity (R/E) data; the representation of Black, Hispanic, and Asian children and their parents in pediatric medical research; the extent to which language may be a barrier in pediatric research; and how R/E data were collected in pediatric research. Collecting R/E data in medical research was difficult because the data were not presented in a standardized format. Black children and their parents were overrepresented, while Hispanic children and their parents were underrepresented in pediatric research. Black subjects had greater overrepresentation in clinical trials than in nontherapeutic research, and a greater representation in research that was potentially stigmatizing. Language barriers existed in pediatric research, and the most number of Hispanic and Asian participants were enrolled in research in which translation services are available.

Keywords: pediatric research; medical research; minority representation; Blacks; Hispanics; Asians; children

Chapter.  7955 words. 

Subjects: Moral Philosophy

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