Chapter

Reflections on Years of Caring

Jacqueline Worswick

in A House Called Helen

Second edition

Published in print November 2000 | ISBN: 9780192632357
Published online November 2011 | e-ISBN: 9780191730122 | DOI: http://dx.doi.org/10.1093/acprof:oso/9780192632357.003.0009
Reflections on Years of Caring

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The continuing story of Helen House lies in the way it carries on responding to the needs of the families who come to it for help, and these are inevitably affected by the difficulties, problems, and attitudes the families encounter in the wider context, by the prevailing climate in society. This chapter describes some of the experiences in caring for Helen at home over the years and touches on the family's feelings about them and about some of the prevailing attitudes and approaches within society. Over the last 14 years, people have learnt much about the problems of long-term care and also, more specifically, about the pain and loneliness of having a very ill or helpless child. What is certain is that Helen is loved beyond measure.

Keywords: Helen House; hospice; volunteer work; carer; long-term care

Chapter.  10568 words. 

Subjects: Palliative Medicine

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