Joey Court: Death of a Child

David Barnard, Patricia Boston R.N., Anna Towers and Yanna Lambrinidou

in Crossing Over

Published in print March 2000 | ISBN: 9780195123432
Published online November 2011 | e-ISBN: 9780199999835 | DOI:
Joey Court: Death of a Child

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This chapter discusses Joey Court, a child with an unusual and invariably fatal medical disorder. Joey was expected to die from the first year of his life. Despite the severity of his condition, his parents treated Joey like a normal child. Joey lived for nine years without the aid of life-prolonging treatment. During this period, his parents made a difficult decision to withhold life-prolonging treatment and admitted Joey to the home care services of hospice. He lived for another five months while relying solely on palliative interventions. The chapter narrates how the family coped with the death of a child. It touches on the different themes of pediatric hospice care such as the decision to terminate aggressive treatments, the anticipation of death, the grief and bereavement of all the family members, and the question “why?”

Keywords: medical disorder; child; life-prolonging treatment; child death; pediatric care; anticipation of death; terminate treatments; grief; bereavement

Chapter.  10715 words.  Illustrated.

Subjects: Palliative Medicine

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