Chapter

Issues in Measuring Family Care Needs and Satisfaction

Russell K. Portenoy and Eduardo Bruera

in Issues in Palliative Care Research

Published in print September 2003 | ISBN: 9780195130652
Published online November 2011 | e-ISBN: 9780199999842 | DOI: http://dx.doi.org/10.1093/acprof:oso/9780195130652.003.0013
Issues in Measuring Family Care Needs and Satisfaction

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Findings specific to family care needs indicate that families have needs in two domains: concerns about patient care and specific requirements of their own. A consistent theme in the family needs literature is the importance of communication between health professionals and families. Researchers and clinicians who measure these needs must be alert to the comprehensiveness of the domain measured, the clarity with which needs and need fulfillment rankings are made and compared, and unique reliability issues associated with needs assessments. Family care satisfaction appears to be best measured by a multiple-item tool using a direct, multidimensional approach. Although on the surface, family care satisfaction may appear to be a construct that shows little variation, it may be a useful way of identifying family members who are hurting the most and who may not have other ways of expressing their concerns.

Keywords: families; communication; patient care; family care satisfaction; needs assessments

Chapter.  5966 words. 

Subjects: Palliative Medicine

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