Chapter

Family carers of people with advanced organ failure and neurodegenerative disorders

Janice Brown and Julia Addingto-Hall

in Family Carers in Palliative Care

Published in print October 2008 | ISBN: 9780199216901
Published online November 2011 | e-ISBN: 9780191730252 | DOI: http://dx.doi.org/10.1093/acprof:oso/9780199216901.003.0013
Family carers of people with advanced organ failure and neurodegenerative disorders

Show Summary Details

Preview

This chapter examines the needs, conditions, and experiences of family carers of people with neurodegenerative disorders and advanced organ failure. It focuses on six disorders which currently receive limited attention from hospices and specialist palliative care services. These are multiple sclerosis, motor neurone disease (MND), Parkinson's disease, Huntington's disease, chronic heart failure, and chronic obstructive pulmonary disease (COPD). The findings reveal that these conditions pose distinct caregiving challenges and they negatively affect the physical and emotional well-being of the family carer, their quality of life, their social life, and their finances.

Keywords: quality of life; organ failure; neurodegenerative disorders; multiple sclerosis; motor neurone disease; social life; finances; chronic heart failure; chronic obstructive pulmonary disease

Chapter.  11646 words. 

Subjects: Palliative Medicine

Full text: subscription required

How to subscribe Recommend to my Librarian

Buy this work at Oxford University Press »

Users without a subscription are not able to see the full content. Please, subscribe or login to access all content.