Protecting privacy interests in brain images: The limits of consent

Sarah J.L. Edwards

in I Know What You're Thinking

Published in print August 2012 | ISBN: 9780199596492
Published online September 2012 | e-ISBN: 9780191745669 | DOI:
Protecting privacy interests in brain images: The limits of consent

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This chapter discusses the efficacy of valid consent. It suggests that the standards for consent offered by current data protection laws may be inadequate, especially as technology becomes capable of remote use and is more widely used outside medical research (thereby avoiding both the potential for professional negligence charges and the rules of research governance). In these circumstances, consent is likely to provide only the weakest form of protection, if any, and so may not be sufficient to ensure a reasonable balance between protecting the privacy interests of individuals and the interests of those wanting to make use of the knowledge which neuroscience offers. This conclusion may seem radical in that it challenges our intuitive ideas about privacy in the age of neuroscience: consent may after all not be sufficient to protect privacy interests in brain images.

Keywords: informed consent; privacy; data protection laws; brain imaging; neuroscience

Chapter.  8570 words. 

Subjects: Neuroscience

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