Capacity development in participatory action research

Mary Lou Kelley and Margaret McKee

in Participatory Research in Palliative Care

Published in print December 2012 | ISBN: 9780199644155
Published online January 2013 | e-ISBN: 9780191749094 | DOI:
Capacity development in participatory action research

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The purpose of this chapter is to propose and illustrate an integrative framework that can be used to guide participatory action research that aims to develop palliative care programs within long term care (LTC) homes for elderly people. The framework consists of participatory action research (PAR) as an overarching approach, capacity development model, and, four practice principles: cultural competence, empowerment, relational ethics, and partnerships. Based on five years of experience conducting PAR with LTC homes in Ontario, Canada, the authors offer this framework as a resource to guide the work of other researchers and long term care homes who wish to develop palliative care programs. Further, the authors believe that our framework could apply to any research focusing on palliative care capacity development in a defined community or organization.

Keywords: participatory action research; palliative care; long term care homes; capacity development; cultural competence; empowerment; relational ethics; partnerships

Chapter.  5859 words.  Illustrated.

Subjects: Palliative Medicine

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