Challenges for collaboration

Katherine Froggatt, Katharina Heimerl and Jo Hockley

in Participatory Research in Palliative Care

Published in print December 2012 | ISBN: 9780199644155
Published online January 2013 | e-ISBN: 9780191749094 | DOI:
Challenges for collaboration

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This chapter concludes this edited book by bringing together some key themes that have arisen through the accounts presented here in terms of the strength, weaknesses, and existing gaps in the field. The studies presented in this book are reviewed using a typology of change that considers the individual, the team/group, organisational, and the wider system level providing observations about the state of participatory research in palliative care and about challenges at specific levels. The challenges identified within these action research studies concern: issues of relationship, initiating and sustaining participation, processes of change, issues of power, ethical considerations, engaging with sensitive topics. Attention to reflexivity and responsiveness are described as ways to address these challenges.

Keywords: palliative care; action research; challenges; systems; change management

Chapter.  5387 words. 

Subjects: Palliative Medicine

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