Journal Article

Asian Carers' Experiences of Medical and Social Care: The Case of Cerebral Palsy

Ghazala Mir and Philip Tovey

in The British Journal of Social Work

Published on behalf of British Association of Social Workers

Volume 33, issue 4, pages 465-479
Published in print June 2003 | ISSN: 0045-3102
Published online June 2003 | e-ISSN: 1468-263X | DOI: http://dx.doi.org/10.1093/bjsw/33.4.465
Asian Carers' Experiences of Medical and Social Care: The Case of Cerebral Palsy

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This paper discusses the experience of South Asian carers of a person with cerebral palsy. Previous research in this area has failed to explore carers' perceptions of causation or their views on the quality of service support. Qualitative interviews were carried out with twenty carers in two localities in the north of England with the aim of providing in‐depth contextualized data on their experiences over time, their attitudes towards cerebral palsy and their interactions with service provision. Results show that parents' views on causation differ markedly from explanations based on a medical, genetic model of cause. Parental attitudes towards cerebral palsy are shown to be influenced both by interactions with service professionals and by parents' ability to manage their situation. The absence of adequate material and emotional resources may foster a negative construction of disability by parents that, in turn, has detrimental effects on the individual with cerebral palsy. Parents' religious beliefs can act as a source of emotional support that helps them develop a constructive perspective on disability and deal with future uncertainty. We conclude that developments in service provision need to build on the perspectives of South Asian individuals and communities to respond effectively to their needs.

Journal Article.  0 words. 

Subjects: Social Work

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