Journal Article

Adults with a Learning Disability Living with Elderly Carers Talk about Planning for the Future: Aspirations and Concerns

Laura Bowey and Alex McGlaughlin

in The British Journal of Social Work

Published on behalf of British Association of Social Workers

Volume 35, issue 8, pages 1377-1392
Published in print December 2005 | ISSN: 0045-3102
Published online September 2005 | e-ISSN: 1468-263X | DOI: http://dx.doi.org/10.1093/bjsw/bch241
Adults with a Learning Disability Living with Elderly Carers Talk about Planning for the Future: Aspirations and Concerns

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The majority of adults with a learning disability live with family carers, many of whom are ageing and have support needs of their own. Planning for the future thus becomes the key to preventing a crisis situation when family care is no longer viable because of death or ill health. Existing knowledge and practice are largely based upon the perspective of professionals and carers. This study explores the views, aspirations and concerns of adults with a learning disability, about living at home and planning for the future. Findings show that participants were very aware of the need for alternative housing or support in the future and had clear preferences about their future options. However, they also showed extensive concern for their family carers and this often impacted on their willingness to plan for the future or to move to alternative housing. Their demonstrable awareness of the inevitable death or ill health of family carers, and willingness to engage with the implications, emphasize the importance of involving adults with a learning disability in planning for their future, as well as providing them with bereavement support.

Keywords: learning disabilities; planning for the future; older family carers; empowerment.

Journal Article.  7331 words. 

Subjects: Social Work

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