Chapter

Commentary: Bioethical Considerations in Autism Research and Translation: Present and Future

Holly K. Tabor

in Autism Spectrum Disorders

Published on behalf of Oxford University Press

Published in print May 2011 | ISBN: 9780195371826
Published online September 2012 | e-ISBN: 9780199965212 | DOI: http://dx.doi.org/10.1093/med/9780195371826.003.0087
Commentary: Bioethical Considerations in Autism Research and Translation: Present and Future

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  • Child and Adolescent Psychiatry
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This commentary highlights several key and emerging challenges in autism research and in the shifting boundaries between research and clinical translation, which are likely to influence the practice of clinicians and researchers, as well as the experiences of families, in the near future. The first area examined is the challenge of obtaining meaningful assent for children with autism. While the issue is examined in a research context for children under the age of eighteen years, many of the same issues are applicable for adults with autism because of the communication difficulties associated with the disorder; these are also relevant for informed consent in a clinical context. The second area examined is the research ethics involved with the enrollment of typically developing siblings of children with autism in research. The third area examined is the risk of therapeutic misconception in autism research. The fourth area examined is the potential for challenges associated with accelerated translation of research findings into clinical practice, using the example of array comparative genomic hybridization testing for autism.

Chapter.  7228 words. 

Subjects: Child and Adolescent Psychiatry ; Neurology ; Neuroscience

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