Chapter

Family experiences: Part II, Later stages

Helen M. Brewer and Marie McGill

in Juvenile Huntington's Disease

Published on behalf of Oxford University Press

Published in print January 2009 | ISBN: 9780199236121
Published online November 2012 | e-ISBN: 9780191753213 | DOI: http://dx.doi.org/10.1093/med/9780199236121.003.0002
Family experiences: Part II, Later stages

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As with Chapter 1, these contributions are based on real accounts from families and are extremely valuable for setting the clinical and scientific chapters in context. We chose to publish them with minimal editing. Whilst the perceptions of the writers are real, where others are mentioned it has to be borne in mind that the perceptions of these third parties are not known.

The following contributions talk about different people’s experiences of the later stages of juvenile Huntington’s disease (JHD). These are not easy things to talk or think about, but we hope that by including them it will help others understand what families go through in these most difficult of times.

Chapter.  7072 words. 

Subjects: Neurology

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