Chapter

Psychosocial aspects of CF care

Alistair Duff and Helen Oxley

in Cystic Fibrosis

Published on behalf of Oxford University Press

ISBN: 9780199582709
Published online September 2011 | e-ISBN: 9780199607563 | DOI: http://dx.doi.org/10.1093/med/9780199582709.003.0009

Series: Oxford Respiratory Medicine Library

Psychosocial aspects of CF care

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• Psychological assessment and support is essential post-diagnosis • Behavioural difficulties are common in pre-school children. Poor mealtime behaviours are particularly problematic • Adherence to treatment remains a significant psychosocial challenge. There is growing evidence for the effectiveness of psychological techniques and therapies for improving this • Transition to adult CF services is a process which should involve the entire CF team and requires careful planning and execution • Screening for emotional problems in children and their carers, and adults is essential • Measuring health-related quality of life (HRQoL), evaluates the impact of treatments on how patients feel and function, and should routinely occur annually • Lung transplantation can prolong life with quality for those with end-stage disease, however the psychosocial impact can be considerable • Palliative care skills is a core-competency for adult CF team-members.

Chapter.  2824 words. 

Subjects: Respiratory Medicine and Pulmonology

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