Chapter

Living with dementia in a care home: a review of research evidence

Alisoun Milne

in Mental Health and Care Homes

Published on behalf of Oxford University Press

Published in print May 2011 | ISBN: 9780199593637
Published online February 2013 | e-ISBN: 9780191754722 | DOI: http://dx.doi.org/10.1093/med/9780199593637.003.0007
Living with dementia in a care home: a review of research evidence

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Living in a care home with dementia is an enormous challenge: in addition to their declining cognitive powers, residents often have to cope with physical frailty, communication problems, and dependency on others. These combined difficulties routinely result in their perspectives being ignored. Research instruments, interviews, and observational methods have made a significant contribution to our appreciation of what is important to residents with dementia. More recent research that is attempting to capture the lived experiences of residents is adding further to our understanding of both quality of life and care. Specifically, residents prioritize non-disease-related domains of quality of life which is somewhat different to those identified by relatives, care home staff, and ‘objective’ measures. Not only is it evident that residents are able to describe aspects of their situation but they also appear to retain a sense of self and identity. There is a distinctive need for assessment of quality of life among residents with dementia to place their subjective view at its core.

Chapter.  6337 words. 

Subjects: Psychiatry

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