History and epidemiology

Katrina McNamara-Goodger and Chris Feudtner

in Oxford Textbook of Palliative Care for Children

Second edition

Published on behalf of Oxford University Press

Published in print May 2012 | ISBN: 9780199595105
Published online July 2012 | e-ISBN: 9780199665020 | DOI:

Series: Oxford Textbooks In Palliative Medicine

History and epidemiology

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  • Paediatrics
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  • Public Health and Epidemiology


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In this chapter, we first briefly cover the history in the twentieth century both of childhood illness in developed countries and of hospice and palliative medicine. We set forth several key definitions necessary for an epidemiological understanding of paediatric palliative care. Then we present a conceptual model of ‘illness journeys’ as a useful framing device for a broad understanding of palliative care. Drawing on the framework of illness journeys, we then present epidemiological and health services data regarding different events and stages in the journey for the patient and their family. We conclude by drawing out several implications of these data for the further development and monitoring of palliative care service delivery systems.

Chapter.  7881 words.  Illustrated.

Subjects: Paediatrics ; Palliative Medicine ; Public Health and Epidemiology

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