Chapter

Impact on the family

Susie Lapwood and Ann Goldman

in Oxford Textbook of Palliative Care for Children

Second edition

Published on behalf of Oxford University Press

Published in print May 2012 | ISBN: 9780199595105
Published online July 2012 | e-ISBN: 9780199665020 | DOI: http://dx.doi.org/10.1093/med/9780199595105.003.0012

Series: Oxford Textbooks In Palliative Medicine

Impact on the family

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When a child is diagnosed with a life-limiting or life-threatening condition (both of these included as LLC in this chapter), their family is cast into a world that they probably had not previously known exists. A world full of confusion, disbelief, and anguish unfurls — a world where diffi cult decisions regarding care and treatment, and the desperate need for hope, will have to be balanced with the realism of the diagnosis and day-to-day living. In this chapter we focus on the importance of caring for the family of a child with an LLC as a unit, each of the family members being integral to the well-being and care of the others. We have included parents’ narratives with the aim of adding depth to the discussion, and in recognition of the truth of families’ own experiences. We begin by looking at the family, the roles of family members, and family functioning. This is followed by an exploration of the impact of having a child with an LLC, and the final section considers the work of professionals and how to offer effective and timely support and help.

Chapter.  12699 words.  Illustrated.

Subjects: Paediatrics ; Palliative Medicine

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