Research in paediatric palliative care

Joanne Wolfe and Hal Siden

in Oxford Textbook of Palliative Care for Children

Second edition

Published on behalf of Oxford University Press

Published in print May 2012 | ISBN: 9780199595105
Published online July 2012 | e-ISBN: 9780199665020 | DOI:

Series: Oxford Textbooks In Palliative Medicine

Research in paediatric palliative care

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In this chapter we outline why research in PPC is essential, we describe the obstacles to conducting research in children and families affected by life-threatening conditions (LTCs), and we propose strategies for overcoming these obstacles in order to ‘lay the foundation’ of evidence needed to provide scientifically sound PPC. Research in palliative care is necessary for the advancement of the field and for the provision of optimal care for our patients and their loved ones. The significant barriers outlined in this chapter are daunting but not insurmountable. Clinicians are encouraged to engage in systematic, rigorous research efforts to support a more evidence-based approach to PPC. The immense needs of our patients may compel clinicians to implement untried or unsubstantiated approaches and interventions. Although this may prove successful in individual cases, care providers should consider the advantages of more methodical strategies. Evidence-based care is not necessarily insensitive care.

Chapter.  16522 words. 

Subjects: Paediatrics ; Palliative Medicine

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