Chapter

Moving forward: understanding the negative experiences and impacts of patient and public involvement in health service planning, development and evaluation

Sophie Staniszewska, Carole Mockford, Andy Gibson, Sandy Herron-Marx and Rebecca Putz

in Critical Perspectives on User Involvement

Published by Policy Press

Published in print November 2011 | ISBN: 9781847427519
Published online May 2012 | e-ISBN: 9781447305590 | DOI: http://dx.doi.org/10.1332/policypress/9781847427519.003.0012
Moving forward: understanding the negative experiences and impacts of patient and public involvement in health service planning, development and evaluation

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Health and social care services across the UK are committed to involving users in the planning and development of their services. Involvement has taken various forms and its success depends on many factors, including how inclusive health professionals are, their own time and budgetary resources and their skills and motivation to get the job done. While user involvement has many positive impacts on services and research, unforeseen consequences can have a negative impact and threaten its success. For example, there are risks attached to involvement activities, including managerial and professional resistance, and the potential for involvement to increase inequalities and for those involved to experience a form of emotional labour that can have negative personal impacts. This chapter draws on research undertaken at the National Centre for Involvement, including a systematic review, an annual survey of involvement activity across NHS Trusts and a study of how involvement is being embedded into the commissioning of services. It identifies iatrogenic impacts and how these can be mitigated to ensure successful involvement within service development. The chapter suggests strategic and practical ways forward to enable the identification of iatrogenic impacts and to develop plans for incorporating these impacts in productive ways.

Keywords: public involvement; negative impacts; NHS staff; emotional labour; workload; impact on users; community impact

Chapter.  5875 words. 

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