The Cancer Support Community

Joanne S. Buzaglo, Alexandra K. Zaleta, Margaret L. Longacre and Mitch Golant

in Cancer Caregivers

Published on behalf of Oxford University Press

Published in print January 2019 | ISBN: 9780190868567
Published online February 2019 | e-ISBN: 9780190868598 | DOI:
The Cancer Support Community

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  • Psychiatry
  • Palliative Medicine
  • Medical Oncology


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The demands of caregiving are associated with physical, emotional, and practical consequences for cancer patients and caregivers. Guided by a person-centered model of evidence-based support, the Cancer Support Community, an international nonprofit organization, provides patient and caregiver support, education, and programming. This chapter highlights two research initiatives: the Cancer Experience Registry® online research program and CancerSupportSource–Caregiver®, a web-based distress-screening program designed to identify caregiver needs and refer caregivers to tailored support services. In addition, the chapter summarizes the educational and support programs available to caregivers at no cost through the Cancer Support Community. Finally, the chapter includes recommendations for future implementation and dissemination research on the effectiveness of integrated caregiver support with respect to quality and cost-related outcomes.

Chapter.  5216 words.  Illustrated.

Subjects: Psychiatry ; Palliative Medicine ; Medical Oncology

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