Chapter

“Caught Between the Suffering and the Good”

Melissa Park and Donald Fogelberg

in Research Involving Participants with Cognitive Disability and Difference

Published in print September 2019 | ISBN: 9780198824343
Published online October 2019 | e-ISBN: 9780191863165 | DOI: https://dx.doi.org/10.1093/oso/9780198824343.003.0028
“Caught Between the Suffering and the Good”

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  • Cognition and Behavioural Neuroscience
  • Neuroscientific Techniques

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A focus on social accountability and responsibility in public and private sectors raises questions about if and how social scientists should act upon the concerns of those with whom they conduct research. Leonardo Campoy argues that anthropologists should be empowered to intervene in the clinical situations they study rather than being limited to actions associated with participant observation. Although his reflections raise issues pertinent to the ethical practices of many researchers, we situate our response in conversation with the historical shifts in ethnographic interest that, most recently, has moved from the suffering subject towards an anthropology of the good. Grounding our reflections in medical anthropology, we discuss the challenge of appropriating positivist–scientific terms to propose the utility of research and, more specifically, of how research results could be used to think through and, thus, guide how researchers respond to—enact and embody—the care required in the ethical conduct of research.

Keywords: translation; underground practices; experience-near; ethnography; epistemology

Chapter.  1302 words. 

Subjects: Cognition and Behavioural Neuroscience ; Neuroscientific Techniques

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