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ALS caregiver quality of life and psychological implications

Peggy Z. Shipley.

in Amyotrophic Lateral Sclerosis

February 2018; p ublished online February 2018 .

Chapter. Subjects: Neurology; Development of the Nervous System. 6981 words.

Amyotrophic lateral sclerosis (ALS) impacts greatly not only those who have the disease, but also family caregivers who provide the majority of care for their loved ones throughout the ALS...

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Amyotrophic Lateral Sclerosis

Edited by Francesco Pagnini and Zachary Simmons.

February 2018; p ublished online February 2018 .

Book. Subjects: Neurology; Development of the Nervous System. 300 pages.

Amyotrophic lateral sclerosis: Understanding and optimizing quality of life and psychological well-being presents a comprehensive and up-to-date review of the enhancement of...

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Bulbar dysfunction in ALS: Psychological implications

Jashelle Caga and Matthew C. Kiernan.

in Amyotrophic Lateral Sclerosis

February 2018; p ublished online February 2018 .

Chapter. Subjects: Neurology; Development of the Nervous System. 5602 words.

Bulbar dysfunction typically manifests as speech and swallowing impairment in amyotrophic lateral sclerosis (ALS). Timely assessment of changes in speech and swallowing is imperative, given...

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Cognitive and behavioural dysfunction in ALS and its assessment

Sharon Abrahams and Christopher Crockford.

in Amyotrophic Lateral Sclerosis

February 2018; p ublished online February 2018 .

Chapter. Subjects: Neurology; Development of the Nervous System. 11276 words.

Cognitive and behavioural dysfunction in amyotrophic lateral sclerosis (ALS) occurs in up to half of patients with a spectrum from ALS with no cognitive or behavioural impairment to ALS...

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Complementary and alternative medicines and ALS

Arianna Palmieri, Francesco Pagnini and Chris Gibbons.

in Amyotrophic Lateral Sclerosis

February 2018; p ublished online February 2018 .

Chapter. Subjects: Neurology; Development of the Nervous System. 10960 words.

Complementary and alternative medicines (CAMs) are medical practices and products that are not part of conventional medical practice, including drugs, diets, mind–body approaches, herbs,...

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End of life: Wishes, values and symptoms, and their impact on quality of life and well-being

David Oliver.

in Amyotrophic Lateral Sclerosis

February 2018; p ublished online February 2018 .

Chapter. Subjects: Neurology; Development of the Nervous System. 6281 words.

The holistic assessment of the patient with ALS and their family will help to maximize the care as the disease progresses and the end of life approaches. This includes consideration of...

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Genetic counselling: Psychological impact and concerns

Bryan J. Traynor and Adriano Chiò.

in Amyotrophic Lateral Sclerosis

February 2018; p ublished online February 2018 .

Chapter. Subjects: Neurology; Development of the Nervous System. 5289 words.

Genetic counselling is the process by which the patients or relatives at risk of an inherited disorder are advised of the consequences and nature of the disorder, the probability of...

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Hastened death: Physician-assisted suicide and euthanasia in ALS

James A. Russell and Zachary Simmons.

in Amyotrophic Lateral Sclerosis

February 2018; p ublished online February 2018 .

Chapter. Subjects: Neurology; Development of the Nervous System. 9296 words.

Amyotrophic lateral sclerosis (ALS), more than any other disease, promotes patient interest in hastened death. From an ethical perspective, end-of-life decision making should pivot on...

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The impact of cognitive and behavioural change on quality of life of caregivers and patients with ALS and other neurological conditions

Tom Burke, Miriam Galvin, Sinead Maguire, Niall Pender and Orla Hardiman.

in Amyotrophic Lateral Sclerosis

February 2018; p ublished online February 2018 .

Chapter. Subjects: Neurology; Development of the Nervous System. 10634 words.

Cognitive and behavioural changes are relatively common in patients with ALS, but often receive less emphasis than the loss of physical strength and function. There is extensive literature...

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Investigating the psychology of assistive device use in ALS: Suggestions for improving adherence and engagement

Christopher D. Graham.

in Amyotrophic Lateral Sclerosis

February 2018; p ublished online February 2018 .

Chapter. Subjects: Neurology; Development of the Nervous System. 6519 words.

In ALS, assistive devices—such as wheelchairs, augmentative, and alternative communication devices (AAC) and environmental controls—are often used to compensate for the functional...

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Mindfulness and mindlessness and ALS

Francesco Pagnini, Deborah Phillips, Eleonora Volpato, Paolo Banfi and Ellen Langer.

in Amyotrophic Lateral Sclerosis

February 2018; p ublished online February 2018 .

Chapter. Subjects: Neurology; Development of the Nervous System. 5546 words.

Mindfulness and mindlessness are two relevant psychological constructs for the field of amyotrophic lateral sclerosis (ALS). When mindful, people are more open, flexible, and aware, and...

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Neglected needs: Sexuality, intimacy, anger

Anna Marconi.

in Amyotrophic Lateral Sclerosis

February 2018; p ublished online February 2018 .

Chapter. Subjects: Neurology; Development of the Nervous System. 5262 words.

ALS diagnosis and progression causes a series of major physical losses and emotional responses. Each patient reacts in a personal way, but the most common emotions during the initial stages...

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Providing holistic care for the individual with ALS: Research gaps and future directions

Francesco Pagnini and Zachary Simmons.

in Amyotrophic Lateral Sclerosis

February 2018; p ublished online February 2018 .

Chapter. Subjects: Neurology; Development of the Nervous System. 1867 words.

Much progress has been made in understanding, measuring, and managing quality of life and psychological well-being in individuals with ALS, but there are gaps. Anxiety and depression have...

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Psychological morbidity in amyotrophic lateral sclerosis: Depression, anxiety, hopelessness

Dorothée Lulé, Albert C. Ludolph and Andrea Kübler.

in Amyotrophic Lateral Sclerosis

February 2018; p ublished online February 2018 .

Chapter. Subjects: Neurology; Development of the Nervous System. 7597 words.

Amyotrophic lateral sclerosis is a devastating condition with progressive loss of movement, speech, and respiratory function, and no available cure. Following the development of clinical...

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Psychological research in amyotrophic lateral sclerosis: Past, present, and future

Tamlyn J. Watermeyer and Laura H. Goldstein.

in Amyotrophic Lateral Sclerosis

February 2018; p ublished online February 2018 .

Chapter. Subjects: Neurology; Development of the Nervous System. 7155 words.

This chapter, of particular interest to those interested in psychological treatments for people with amyotrophic lateral sclerosis (ALS), outlines earlier work that sought to identify...

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Quality of life in ALS: What is it and how do we measure it?

Vincenzo Zaccheo and Zachary Simmons.

in Amyotrophic Lateral Sclerosis

February 2018; p ublished online February 2018 .

Chapter. Subjects: Neurology; Development of the Nervous System. 7369 words.

Because of the limited range of treatments available for ALS, care is centred on maximizing quality of life (QoL). There is no universal definition of QoL, and no single instrument of...

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Resilience and coping strategies in ALS patients and caregivers

Stephanie H. Felgoise and Michelle L. Dube.

in Amyotrophic Lateral Sclerosis

February 2018; p ublished online February 2018 .

Chapter. Subjects: Neurology; Development of the Nervous System. 10140 words.

The experience of living with amyotrophic lateral sclerosis (ALS) necessitates adaptation by the person living with ALS (PALS) and their caregiver. In the face of an incurable illness, many...

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‘They embrace you virtually’: The internet as a tool for social support for people with ALS

Paul Wicks.

in Amyotrophic Lateral Sclerosis

February 2018; p ublished online February 2018 .

Chapter. Subjects: Neurology; Development of the Nervous System. 6224 words.

People with ALS may feel lonely, isolated, and bereft of information. Although professionals provide support, their time is in short supply and patients only see them periodically. For many...

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