Book

Palliative Care in Amyotrophic Lateral Sclerosis

Edited by David Oliver, Gian Domenico Borasio and Declan Walsh

Second edition

Published in print November 2006 | ISBN: 9780199212934
Published online November 2011 | e-ISBN: 9780191730368 | DOI: https://dx.doi.org/10.1093/acprof:oso/9780199212934.001.0001
Palliative Care in Amyotrophic Lateral Sclerosis

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Amyotrophic lateral sclerosis (or motor neurone disease) is a rare disease but one that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. This book reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families, culminating in discussion of bereavement. The experience of patients and families is considered and case studies are provided to show the practical application of the theoretical knowledge. Different models of care are explored, and this second edition of the text utilises the increase in both the evidence-base and available literature on the subject. Additional chapters on nursing, spiritual care, decision making, and ethical issues surrounding end of life care are included in this edition.

Keywords: amyotrophic lateral sclerosis; motor neurone disease; ALS; palliative care; neurology team; psychosocial care

Book.  364 pages.  Illustrated.

Subjects: Palliative Medicine

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Table of Contents

Amyotrophic Lateral Sclerosis/Motor Neuron Disease in Palliative Care in Amyotrophic Lateral Sclerosis

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Palliative Care in Palliative Care in Amyotrophic Lateral Sclerosis

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Communication: Breaking the News in Palliative Care in Amyotrophic Lateral Sclerosis

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Decision Making in Palliative Care in Amyotrophic Lateral Sclerosis

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Advance Directives in Palliative Care in Amyotrophic Lateral Sclerosis

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Control of Symptoms: Dysphagia in Palliative Care in Amyotrophic Lateral Sclerosis

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Control of Symptoms: Cognitive Dysfunction in Palliative Care in Amyotrophic Lateral Sclerosis

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Psychosocial Care in Palliative Care in Amyotrophic Lateral Sclerosis

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