Book

Amyotrophic Lateral Sclerosis

Edited by Francesco Pagnini and Zachary Simmons

Published on behalf of Oxford University Press

Published in print February 2018 | ISBN: 9780198757726
Published online February 2018 | e-ISBN: 9780191817618 | DOI: https://dx.doi.org/10.1093/med/9780198757726.001.0001
Amyotrophic Lateral Sclerosis

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Amyotrophic lateral sclerosis: Understanding and optimizing quality of life and psychological well-being presents a comprehensive and up-to-date review of the enhancement of the lives of people with amyotrophic lateral sclerosis (ALS) and their caregivers. ALS is a progressive, fatal neurodegenerative disorder. No current medical therapy can reverse or stop its progression, and the promotion of quality of life and psychological well-being is a central component of ALS care. Health care professionals who work in this field should incorporate attention to psychological, emotional, and relational aspects of the disease into their approach to care. This book provides some of the knowledge and direction necessary for optimizing the quality of care for individuals with ALS and their caregivers. Topics discussed include an ALS-centred view of quality of life, depressive features, anxiety, resilience, cognitive impairment, complementary and alternative medicines, and psychological research. Specific elements of ALS, such as end-of-life concerns and bulbar dysfunction, are described through the lens of their psychological impact. There is extensive discussion of the development of new psychological treatments, as well as the impact and incorporation of new technologies, with the goal of fostering optimal quality of life and psychological well-being as key parts of a holistic approach to care for the patients and for those who are close to such individuals.

Book.  300 pages.  Illustrated.

Subjects: Neurology ; Development of the Nervous System

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Table of Contents

Mindfulness and mindlessness and ALS in Amyotrophic Lateral Sclerosis

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Complementary and alternative medicines and ALS in Amyotrophic Lateral Sclerosis

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Neglected needs: Sexuality, intimacy, anger in Amyotrophic Lateral Sclerosis

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